Thursday, April 30, 2020

Becoming a "Sleeping Beauty"!


My last posting appeared on Sunday, March 22. Since that time I’ve neither posted nor read any of your blogs because four health concerns have modified my life. Of these, only one kept me from writing: my compromised vision due to Glaucoma. 

In past postings, I’ve explained that on December 9, 2015, the pressure in my eyes went into the danger zone of the high fifties: 56 in the left eye, 59 in the right. The acceptable pressure is usually 15-17. At 20, most ophthalmologists prescribe Glaucoma drops for their patients. 

On that December day, the high pressure so alarmed the ophthalmologist I saw regularly that he immediately sent me to a specialist an hour away. I was told that I had to be seen within five hours or possibly lose the vision in both eyes.

The specialist saw me immediately even though that meant that several really “patient” patients had to wait an hour or more for their scheduled appointments. Working with extremely thin needles on my numbed eyes, she brought the pressure down into the forties, then scheduled procedures for the following week. During that week, my vision dimmed dramatically.

Since then I’ve twice had stents placed in both eyes and been on the following regimen: Glaucoma drops 3x a day; anti-inflammatory drops 2x a day in my right eye; lubricant drops 6x a day in both eyes.

That’s been the routine until a few weeks ago. My vision is always somewhat blurry—as if a sheer curtain or a smear of Vaseline covers my eye. However, when I’ve worn reading glasses there’s been no blurriness with e-books. That changed in the final days of March. The iPad type—no matter the size—was too blurry to read. (I haven’t been able to read the type of paper books since 2015.)

I called the specialist’s office and spoke with the tech I’ve come to trust for her clear explanations and discerning questions. Because of the Corona virus, the specialist was taking only emergencies, however, my vision concerns did not meet the emergency standards. Instead the tech wanted me to rest my eyes. I was to stop watching television, reading e-books, and using a computer. In other words, I had to cease any prolonged focusing.

Thus, no writing of blog postings. No reading of blogs.  No writing of memoir.

For much of April, I closed my eyes and listened to audio books; cooked soups and casseroles and froze individual servings; listened to PBS Newshour with eyes closed; visited with family members and friends by phone; and quickly scanned e-mails and Facebook in the ten minutes I used the computer each day. Also, I napped, dozed, and slept often.

That continued until the blurriness with reading subsided. When I called and reported this to the tech, she asked me to go on another regimen: I could focus again on the computer, television, and iPad, but for no longer than 20-30 minutes at a time. Then I was to put lubricant drops in my eyes and keep them closed for twenty minutes. 

So for doing any prolonged focusing, here’s the routine: 30 minutes of television, computer, or iPad use followed by 5 minutes doing drops, 20 minutes listening to an audio with eyes closed, and 5 minutes for whatever. Half-hour on/ half-hour off for a chosen focus session—morning, afternoon, or evening.

I’ve been doing this now for about ten days, trying to get used to it. I haven’t blogged because I’m also trying to get caught up a little on the memoir writing.  But now I’m ready to re-enter the virtual world that awaits me in your blogs! So “read” you soon.

Peace. And I so hope that all of you are well.
 FYI: This regimen will continue until I see the Glaucoma specialist on May 22. Then we'll go from there.

Thanks to Wikipedia for the illustration for Tennyson’s 1830 Sleeping Beauty poem.

29 comments:

  1. May your medical team's strategies continue to resolve those eye challenges.

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    1. Dear LC, thank you. Dr. Ann is doing all she can to retard further damage to my optic nerves. They were seriously and irreparable damaged by that high pressure. I'm fortunate that she is so dedicated to her patients. Peace.

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  2. Thank you for letting me know what's been going on. That is quite a strict regimen, but it seems to be working, so it's worth it. I sincerely hope that specialist will be able to help. I think the hardest thing for me would be to lose my eyesight, and with advanced AMD, I worry about it happening. Sending you virtual hugs, Dee. Peace to you.

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    1. Dear DJan, is your AMD wet or dry? I know with one of those there is a monthly shot. I'm so sorry to learn that yours is already advanced. No one you worry. I'm sending you virtual hugs also. Do you notice that the AMD has changed or modified or affected your hiking? Peace.

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  3. Oh Dee. I am so very sorry, and beyond thrilled to hear that the strict regimen is taking you on slow steps but in the right direction.
    Blogging can wait. Know that so many of us have a safe and warm place reserved for you in our hearts.

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    1. Dear Sue, the silver lining for me is that I am once again reading (through listening) nonfiction books about so many different subjects. I did that for many years and then discovered the genre of mysteries and for the last 25 years I've concentrated on fiction/mysteries. Now I'm going back to a first love! Peace.

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  4. It's good you were able to get good advice, and I suppose "good" that you are accustomed to following such strict procedures for your eyes.

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    1. Dear Joanne, I wonder sometimes if I might be Obsessive/Compulsive because the regimen works for me--I can be so disciplined about it and about so many others things I lack discipline. Peace.

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  5. Problems with eye sight is so scary! Sorry you have to deal with this.

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    1. Dear Jean, it is scary but as with all things, good can come out of this and it is coming. Listening to audible books is being such a treat. Thank you for your concern. I trust that all shall work out to good. Peace.

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  6. I'm glad they have been able to help you!

    May your sight return to full soon. ❤️

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    1. Dear Sandi, thank you for your good wishes. When the pressure got in the danger/red flag area in December 2015, it damaged my optic nerves "seriously" and "irreparably." Now the specialist and I are concentrating on retarding further damage. She does her part; I, mine! Peace.

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  7. I was concerned for you when you disappeared from Blogland, but I know that you take breaks every now and then. I am glad to read that you kept strictly to the doctors recommendation and have an appointment this month.

    Take care, dear Dee, and stay safe.

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    1. Dear Arleen, I can be a real stick-to-it person when I know what can happen if I were to be lackadaisical about something like my eyesight. So the regimen is welcomed. I do look forward to seeing the specialist on May 22 and to discovering just what has happened and what we are dealing with. And, Arleen, please, you, too, take care and stay safe. You are important to so many of us. Peace.

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  8. Wow, that had to be a really scary time. I am just grateful that you were given the care you needed in time. That is quite a regime but it seems to be working. Keep up with the program and know we are thinking about you and praying for you. Sending hugs.

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    1. Dear Patti, thank you for prayers and thoughts and hugs! I hope you are well and have not suffered unduly from the COVID crisis we are experiencing. Your natural instinct, it seems to me, is always to help others and lift their spirits. I know that you must have found ways to do that in the past many weeks. When I start reading blogs again (tomorrow I hope) I bet I find stories about that. Peace.

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  9. Eye problems would scare me, as they would anyone.
    Audio books are awesome, I lisen to them all the time

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    1. Dear Jo-Anne, yes, audio books truly are awesome. I've always listened to them as I walk and as I cook or bake in the kitchen, but now they are part of each day and I'm so enjoying returning to non-fiction books. I've read only fiction for many years and I've missed so much! Take care of yourself and please stay safe. Peace.

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  10. Dee, I'm so sorry that you are going through all that... definitely scary. But you seem to be handling it well. My friend swears by Audio books. She has trouble with her eyes too... not as serious as yours, but finds audio books easier. I will keep you in my thoughts and prayers. Please take care.

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    1. Dear Rian, thank you for your thoughts and prayers. That means a lot to me. As the days pass I'm aware that my vision is changing and I'm wondering if it's simply that I need new glasses! Wouldn't that be wonderful! We'll see--pun intended!--when I have my appointment with the specialist on May 22. Peace.

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  11. I'm so glad you are doing OK, if not 100%. Your eyedrop regime reminded me of Samson's before he saw the specialist and now only gets one drop in each eye per day. Seeing through a sheer curtain would drive me nuts. You are were trained to be patient, I imagine, and it must have helped you during this time.

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    1. Dear Inger, I used to be a patient person--when I was young and thought that if I were patient, people would like me better. (I was so insecure and immature! And that's part of my new memoir.) But as I've aged and decided to just be who I am, I've become somewhat less patient--when I standing in line or waiting on the phone especially. It's not so much patience, Inger, that you are seeing in my life right now. It's really more that I truly believe what Julian of Norwich said so long ago: "And all shall be well. And all shall be well. And all manner of things shall be exceedingly well." I believe that and it's gotten me through Meniere's and everything else that has happened in my life. Peace.

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  12. I’m so glad to hear your eyesight is somewhat better and you have competent medical advise that you can call on in the midst of the pandemic. How frightening to have that happen to your vision. And I realize in the midst of your difficulties you wrote me a much appreciated email after the death of my cat. I had no idea what I was burdening you with. Anyway, thank you for your very kind words of encouragement and I hope you continue to see improvement in your vision.

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  13. Dear Cynthia, remove from your mind and thoughts any idea of burden. To lose an animal companion of so many years and of such sweetness is so difficult and I was humbled that you shared your loss with me and that I could respond. I hope your memories continue to comfort . . . and delight . . . you. Peace.

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  14. May the regimen keep you connected to writing, reading and watching TV! How nice that you've a tech on whom you can rely for solid, clear information regarding what is going on with your eyes.

    Thinking of you,
    Bea

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  15. Dear Bea, thanks so much for your good wishes. And yes, Tammy has helped me so many times since I first went to the Glaucoma clinic in December 2015. She's a treasure--and so is the specialist! Hope all is well. Peace.

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  16. Dee, I hope with May arrived here and up North, the new month will bring better eye health. Vision is so important, our younger daughter had to have laser?: treatment to prevent glaucoma, quite scary at a younger age. Your days have been full of treatment times and regimes, I marvel that you could manage to read my blog or any other and type your words.XXX from NZ

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    1. Dear Nancy, yes, Glaucoma would be so scary at a younger age. I hope all is well with your younger daughter. I'm eager . . . and somewhat anxious . . . to see the specialist on the 22nd. But one of the consequences of this new regimen is that I am now listening to audio books from the library rather than reading the e-books. And oh, I am so enjoying this! Take care. I know that so many of us here in the United States are in awe of how your leaders--especially your prime minister (is that her title?)--have handled the COVID-19 pandemic. So many mistakes have been made here by our federal government and so we look at New Zealand and Germany and Korea as three countries who knew what to do and did it promptly. Peace.

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  17. Dee, I see that you are No comments in your last post, but sending A heap of love, hoping someone will read this for you.Our eyes are in my opinion, the most important of all our senses, and with cataracts in creasing every week, I can understand how you must feel as your problems far excel mine at any level. Keep calm, love form down here, as we head into winter, will have the cold night with only 1 Celsius.XXXXX

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