Just last week I posted the routine
to which I was going to commit myself for the remainder of this year. Several
of you left comments in which you encouraged me—gently—to be more realistic and
not ask too much of myself.
How
wise you are. Already my three-pronged plan has become too ambitious. In less
than five weeks, I’ll celebrate my 78th birthday. And the truth is
that I no longer have the energy and resilience I once took for granted.
Moreover,
I deal daily with two physical problems that leave me tired much of the time. Today,
I’ll share with you the ramifications of one of them—Ménière’s Disease. Next
Thursday I hope to explain the impact of Cutaneous T-Cell Lymphoma.
I
experienced my first episode of Acute
Rotational Vertigo in 2002. Nothing occurred again until 2006 when my
Ménière’s became, according to the specialist, progressive and intractable.
I
spent the next eighteen months experiencing ARV episodes—with the walls,
ceiling, and floor rotating around me. Nausea and vomiting accompanied each
episode. I couldn’t walk without falling and so I crawled from room to room.
These
episodes usually began with me suddenly pitching forward: down the steps, in
the rock garden, out of bed, against windowpanes and the sharp corners of
tables, toward the pot of boiling spaghetti. The pitch forward, prelude to the episode,
came without warning.
The
episodes were of varying length. The longest for me was twenty-four hours.
Because of Ménière’s, I couldn’t drive. Read. Watch television. Work at the computer.
An
operation in 2007 made those ARV episodes mostly a thing of the past. However, two
weeks ago I experienced ten hours of simple vertigo. Not acute rotational. Just
simple. And yet it had me crawling from bed to bathroom to kitchen. Mostly I kept
my head on the pillow. Why? Because a boulder had lodged within my skull
cavity. When I raised that heaviness off the pillow, I felt as if my head were
going to tumble off my shoulders.
But
that occurrence was, I hope, simply a fluke because neither ARV nor simple
vertigo happens often anymore. I do have days in which I deal with about five
variations of vertigo in ascending order: tentativeness, imbalance,
light-headedness, dizziness, wooziness. When I have one of those days, I do
little.
The
more problematic side effect of Meniere’s is its headache. In intensity it’s
like a migraine, but without light sensitivity. Precipitous barometric changes
often trigger these headaches, which can last many hours. They leave me exhausted,
as do vertigo episodes and wooziness. I sleep long hours after experiencing
them.
Unfortunately,
I live in an area known as “Tornado Alley,” which brings with it many
barometric changes. So I have headaches often. In fact, I’ve had a headache everyday
for the last sixteen days. During that time, desperate to assure myself that I
could get something written this year and find an agent, I wrote last week’s
posting. I think that’s called “whistling in the dark”!!!
But
yesterday I read the following words written by the Buddhist monk Pema Chödrön:
“Take the whole teatime just to drink your tea.” That line encourages me to
live in the present and be within whatever I am experiencing. It encourages me
to let go of control.
Surely,
planning schedules for the future is a form of control and yet Ménière’s has tried
to teach me again and again that I have control only over the way I respond to
life. As you must know by now, I’m a slow learner. Still, I may finally be slogging
along the road to reality. I feel myself ready to embrace what one of you
suggested: “going with the flow.”
These
are not new words to me. Other friends throughout my life have made the same
suggestion. And I try. I do so try. Maybe that’s the result of the asthma with
which I was born. Always there is within me a desire to achieve. To leave a
mark on life.
So
here’s to going with the flow. I’ll drink—a cup of tea—to that!
PS: If you’d like to know more about Ménière’s, click here. I experienced the four classic symptoms that are listed midway down the
article.
Photographs from Wikipedia.